ALS - As Life Sails

The short film ALS - As Life Sails is a new production by Segredo Filmes and shows a personal approach made by director Lilih Curi. Through archival material and present-day conversations, she addresses the life of her cousin, Marden, who was diagnosed with ALS - Amyotrophic lateral sclerosis, a disease that affects the nervous system in a progressive and degenerative way. In Brazil, it is estimated that 12 thousand people suffer from this disease.

The film, of approximately 22 minutes, shows, under the optic of its main character, a perspective of the memory and the affection. The documentary idea was suggested by Marden himself, in 2017, during a visit from his cousin where he revealed his desire to spread knowledge and give visibility to this disease.

At that time, Marden was no longer able to move his legs and arms and his speech was impaired due to the atrophication of his facial muscles. His diagnosis had been confirmed a year before. In 2019, Marden found Super 8mm film rolls, recorded by his father and with this material the idea for the film began to materialize. During the research, other materials emerged: cassette tapes, pictures, as well as other family materials.

Lilih Curi proposes a personal immersion, in this documentary, of her relationship with her cousin, however not presenting the disease through an informative point of view. ALS - As Life Sails, seeks to talk about life, through memory and affection, from the encounters, reunions, connections and reconnections shown, especially with access to images that refer to the past, and, in parallel, challenge how to face the present and see the future.

Marden com sua filha Alice no colo

The protagonist

Young, married, experiencing parenthood with his three-year-old daughter, Alice, just after securing his dream job. Marden was diagnosed with ALS in 2015, a disease he has lived with the past seven years, which imposes physical limitations on him. He faces this disease head on and seeks to make his contribution so that, soon, a cure can be found.

Memória

afeto

tia e pai segurando Marden criançaMarden, Alice e Sobrinha Fotos antiga de Marden com a família no sítioLilih, Marden e irmão quando criançasMardem e Paula juntosMarden junto com amigos, Paula e AliceMarden no dia dos pais com Alice e PauloFotografia antiga da turma da escola

The film-maker

Lilih Curi is a director, screenwriter and producer. Graduated in Communication and with a Master’s Degree in Performing Arts, she studied Scene Direction at EICTV/Cuba. In 2013, she founded Segredo Filmes, in which she directed the short films:
Carmen (2013);
Teresa (2014);
Carolina (2017);
Dystopia (2020)
ALS - As Life Sails (Preciso falar sobre ELA) (2022).
She has also directed the fiction series ‘Transviar’ (2018);
The short documentary ‘Palhaços do Rio Vermelho’ (2021);
The half-length film ‘Entre Nuvens’ (2022).
She is the director of the film festival “Mostra Lugar de Mulher É no Cinema” (2017/2022).

The team


with
Marden Soares Zionede
Ana Paula Gasparini Braga
Alice Gasparini Braga Zionede
Dr. Acary Souza Bulle Oliveira

Lilih Curi -  Screenplay / Direction / Photography / Production
Marden Soares Zionede -
Screenplay / Production Assistance
Josi Varjão -
Directing Assistance / Photography / Sound / Executive Production
Juca Badaró -
Editing, Screenplay Assistant, Teaser and Credits
Luã Almeida -
Original Soundtrack
Eduardo Joffily Ayrosa -
Mixing
Estúdio Base -
Sound Post-Production
Contorno Áudio e Vídeo -
Telecine, Conversion and Digitization of Images
João Gabriel Riveres -
Image Post-Production
Carlos Baumgarten -
Communication, Press Relations, Social Media and Website Texts
Vicente Rodrigues -
Visual Identity, Art and Web Design and Social Media
Dani Dinelli -
Publicity B&W Photos
Ana Paula Gasparini Braga -
Additional Photography
Matheus Rocha -
Screenplay Assistant
Isabella Rigby -
English Translations
Milagros Díaz -
Spanish Translations
Guilherme Birchal Collares -
Song ‘Den e Paulinha’
Joel e Aloísio -
Motoboys 

ACCESSIBILITY TEAM:
Adriana Urpia -
Audio Description and Narration
Moira Braga -
Audio Description Consultant
Ronaldo Freitas -
Brazilian Sign Language (LIBRAS) Interpreter
Sérgio Nunes -
Recording and Editing
Equipe ADarte -
Descriptive Subtitles

Apoiadores
Sem Rumocontorno audio e videoArte Acessibilidade
Apoio Financeiro
Fundação gragório de mattos, Secretaria de Cultura e Turismo, Prefeitura de Salvador, Secretaria especial da Cultura, Ministério do Turismo, Patria Amada brasil, governo federal

This project was awarded the Riachão Prize - Small Size Projects, from the Gregório de Mattos Foundation, Salvador City Hall, through the Aldir Blanc Cultural Emergency Law, intended by the Special Secretariat for Culture of the Ministry of Tourism, Federal Government.